Getting press

Don’t worry, later this week I’ve got lots of crafty projects and Atti pictures, but as I’m decompressing and trying to get caught up from my big conference I had a couple of things I wrote go live so I thought I’d share them here.

Patheos.com is a great site about religion, and this week they’re doing a series on the future of Mormonism. They asked me to write about the future of Mormon feminism. In the series, my article is listed right below Elder Quentin L. Cook, one of our apostles. That’s really heady company. Also check out the works written by my friends Kristine Haglund and Bridget Jack Jeffries. Big intimidating brains on those two.

Right on the heels of my big conference was a deadline for The Guardian. That Guardian. The only paper read more is the New York Times. It’s kind of a massive deal. Of course, just as I was writing the piece due the next morning, my computer gets completely overrun by the nastiest virus I have ever experienced, I turned into a hysterical screaming mess, and Bear took a personal day so that we could resolve the computer issue, take care of a baby, and meet the deadline because there was absolutely no way I could do that on my own. After buying three different anti-virus programs, doing a full system restore and then a visit with the single best Geek Squad god I’ve ever heard of, we made it back on track and in time.

The post is up today and so far the comments are pretty nice. I’ve only been called a Nazi once. Comments on a site that big are always ridiculous, but on the twin controversial topics of feminism and Mormonism, hoo boy. People have some things to say.

Maximum Fun Drive

There have many times over these blogging years when I’ve written about Jesse Thorn and his work over on Maximum Fun.org, but I have to give him one more plug today, and give you all a heads up about an entertainment feast awaiting you.

When I first got an ipod four years ago, The Sound of Young America was one of the first shows I discovered. I think just through itunes rankings since there weren’t a million podcasts back then, and I fell instantly in love. Jesse and his earnest interviews of awesome guests kept me company through that boring temp job, played over speakers during our neverending house makeover, ran through headphones while I was in the hospital, and came over the computer while I fed Atticus. Just as I say in the video, Jesse’s podcast have been my connection to the grownup world in this sometimes overwhelming childcare gig.

The Sound of Young America is “a public radio show about things that are awesome.” Imagine Fresh Air, if every interview was somebody artistic and creative and totally interesting, and Terry Gross was a surprisingly erudite goofball.

Then Jesse and his pal Jordan Morris, who I sincerely think is one of the funniest people on the planet and until the rest of the world catches up is our secret treasure, started a podcast called Jordan, Jesse, Go! which is basically two goofballs goofing off together. This one never makes it from my computer to my ipod. As soon as a new episode comes through, I drop what I was doing to listen to it. There is a warmth that comes through everything these guys do.

The past couple of weeks have been MaximumFun.org’s annual pledge drive. Today, in a big culmination party, there is an 8 hour marathon of hilarity, totally free, waiting for you in your computer. Starting at 4 pm Pacific, go here, settle back, and wait to be entertained.

Happy Cerebral Palsy Awareness Day!

baby in a box

Cerebral Palsy is a brain injury that occurs either during pregnancy or shortly after birth. There are many causes: problems during pregnancy, infection, brain bleeds, traumatic birth, and as in Atti’s case, oxygen deprivation. Whatever the cause, the damage inflicted to the brain is in the area that governs motor skills.

The brain works like a big electrical circuit board. Messages go from the brain through a system of neurons, like electricity through wires, until it reaches the muscle and tells it to move. When the brain is damaged in this area, it’s like the wires are cut and there’s a blockage in between them.

Because the brain is a marvel, as these kids grow they can often develop new pathways. So to continue our analogy, it’s like the wire can snake around the blockage and repair itself. But this requires more work than I can find words to describe, a staff of dedicated therapists, constant stimulation, a very determined kid, just the right kind of injury, and a whole lot of luck.

Atti loves PT

I give thanks every day that so far, I have all that.

Atti loves his therapists. He loves physical therapy. He wants to move so much. He talks like crazy and I can usually tell what he means.

He is the happiest little kid. Tenderhearted and affectionate. He loves animals and music, I think he’s going to grow up to be my little poet. When we go horseback riding he spends half the time patting the horse on her fuzzy rump. He’ll crawl over to me and press his forehead against my lips for a kiss, and then lift it up and drop it back over and over and over again, making me give him kiss after kiss after kiss.

He is the light of my life.

Tickle

Cerebral Palsy makes life complicated, but it’s no tragedy.

For more information, check out the CDC’s site.

NICU drive update

I have loads of belated thank you’s to give for a million reasons. I’m always pretty shameful about my communication, just ask The Good Twin. I swear she’s going to give up on me completely any day now.

For starters, I’ve already gotten some great stuff for the nursery. My stitchy friend Marilyn lives in Australia and since the shipping on finished items would have been insane, she bought a ton of fabric and goodies from her favorite place here in the states and had them shipped to my house. When she asked what I wanted the most, I just suggested that she buy fabrics that would go together to make a completed blanket. She totally blew my mind by sending tons and tons of gorgeous coordinating fabric, along with all the batting and more thread than I’ll ever use. I think she just figured out how much the international shipping would have cost, and then spent that much and then some on fabric. She seriously blew my mind with her generosity.

See?
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Then, I got a mysterious box in the mail, and in all of my years sporadically blogging, this was probably my very favorite thing that has ever happened. I got the sweetest blankets and letter from “loyal reader Alex.” I can’t even tell you how this made my month Alex. Not only are the blankets perfect and so appreciated, but it just thrilled me to the bone that someone out there I’ve never talked to or emailed or anything is reading and feels connected enough to me to spend their time and money on something close to my heart.
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Also, Tina asked how long I would accept donations, and the answer is always and forever. I have to go back to the nursery every few months for the next few years, so a delivery will always be convenient and even when it’s not, I’m so dedicated to that wonderful staff that I will happily make the drive. In fact, a constant trickle is ideal so they don’t have to deal with storage issues, but just get stuff in as they need it. So feel free to get around to this whenever you have time. I’ll always be here waiting and utterly grateful.

Of course, Blogger only enables my terrible communication since I can’t email back to any comments, and I always feel so stupid commenting on my own blog. Hopefully you’ll see this answer Tina, since I can’t seem to find a good way to contact you.

And before I run, I want to give a big wave and air kisses to one of our fave nurses, Kathleen, who emailed me a while back. She’s adorable you guys, seriously. Love you Kathleen!

Now, I have to go get my kids picture took. I realized that I don’t have a single picture of this kid without the oxygen tube. I never managed to aim a camera at him with one hand while I held him with the other, so somebody else is doing it today. He’s actually going to go be a model. But that’s a story for another day.

Baby Beanbag

Finally, we’ve reached the end of our patterns for the NICU. This item was my very favorite of all the cool little gadgets and things they had there.

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The nurses used this little beanbag for everything and Atticus loved the thing. It’s main purpose is to sit on top of the babies feet, with the arms of the beanbag pushing the babies legs into proper position instead of splayed out to the sides. As we’ve discussed, gravity is very hard on these little bodies that still belong in the womb. Their little legs get pushed open which can cause a lot of harm on their hips and knees and lead to further problems as they develop. This beanbag pushes their legs closed just as they’d be if they were still gestating.

They also frequently just drape this over the baby’s whole body. Atticus just LOVED this. It offers just enough pressure to make the babies feel safe and bundled up and cozy without getting in the way too much. Atti got to sleep with the beanbag way before he had matured enough for it to be safe actually bundling him up.

It also serves as an extra set of hands inside the little isolette. I saw it used to prop up his oxygen tubes or set next to his face to hold the pacifier in place. It’s the greatest little thing ever.

To make the baby beanbag, cut two pieces of the pattern piece. I didn’t include a seam allowance in the pattern because it wouldn’t fit on my paper that way, so I just traced the pattern onto the fabric and then cut about 1/4″ outside the lines. It was also handy being able to just sew right on by traced line when I was going around so many curves. Sew the pieces right sides together leaving a gap between the arms, and turn right side out. These will have to be washed and sterilized constantly, so the best filling to use is the plastic pellets you find in the doll aisle. Each beanbag should be filled about halfway full, which should take about a full bag of pellets. Sew shut thoroughly.

That’s it! If I was unclear about any of these patterns, please email me at tresa at tresaedmunds dot com and I’ll walk you through it.

Baby Clothes for little babies

It’s taken me forever to try to figure out how to post this simple little pattern. Once I scanned it in I had to try to trace it in Photoshop, and that proved to max out my meager computer skills. But I think I’ve finally managed to get it done. I think. Click the links below to find out if I accomplished it.

Large Vest

Small Vest

These vests are used for NICU babies who are attached to too many wires to wear regular baby clothes. If a baby has an IV, they can’t get their little arms into sleeves. If they have a shunt or other head issues, they can’t get their little bean through a neck. And if anything starts to go wrong, you can’t get a baby out of those clothes fast enough to save them.

Experts agree that babies should wear a little something. These vests won’t keep them warm on their own, but every little bit helps. It’s much more for the comfort of the parents and a reminder for the staff. This covers up a lot of the wires and scary parts and makes the baby look more like a little baby. Books I read said that these helped his caregivers to treat the babies like little humans instead of a series of tasks to be performed, and encourage the parents to bond with their babies which can be difficult to do when looking at a red wrinkly thing covered in wires and encased in a plastic box.

Construction is incredibly simple. Cut two of the pattern pieces, on a fold. Unfold both pieces and line them up right sides together. Stitch the pieces together with a 1/4″ seam allowance, leaving a small gap at the bottom and turn right side out. Iron the piece flat, and then topstitch the piece as close the the edge as you can. Finish by stitching squares of velcro where indicated on the pattern so that you create an arm and a vest closure.

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Notice how the velcro is attached? One side of it is attached to the front fabric, and the other side is attached to the back fabric. You don’t want to figure that one out the hard way.

More NICU needs

I’ve already been getting so much great stuff sent my way. I’m so touched by what you all continue to do. I’ve been taking pictures and I’ll show them off once I finally finish putting up the patterns in the first place.

So now that we’ve covered the outside of the isolette, let’s address what these little guys need on the inside.

For starters, there’s their bedding.
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Babies, as I’m sure you’re aware, are both snuggly little things as well as spontaneous poop factories. This bedding serves dual purposes of giving the babies a nice soft little place to lay down, while also being incredibly easy to remove so the isolette can remain sterile even after the poop starts to fly.

They couldn’t be simpler to make. Fleece fabric works best for this since it’s snuggly and a little spongy, so it’s like a blanket and mattress in one. Then it should be cut so that it will measure 24″ x 20″ after a simple hem.

Underneath their little bedding is usually what they call a “snake.”
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This is basically just a stuffed tube that they place in a U shape to make a nice cozy little nest for the babies. During their time in the NICU, it’s all about making the babies feel as close to the womb as humanly possible. This little snake shrinks the big plastic box down to whatever size that particular baby needs, and forces the baby to squish up instead of sprawl out. This is better for their joints, their future development, but especially for their stress level. It’s scary for a baby who is used to the fetal position to suddenly be forced into a starfish position because they’re too little to fight against gravity.

The snake can be made out of any easy care fabric. Flannel and cotton work best. To make them you need a piece of fabric measuring 6 1/2″ by either 30″ or 36″. Sew this fabric into a tube, and then close the ends. I cut a circle that roughly measured the diameter of the tube and sewed that on, but you could easily just sew them shut without adding the extra work.

Then stuff them with polyfil. The right consistency is important in the stuffing. You don’t want them so squishy they don’t offer the support babies need, but you don’t want them overstuffed so they can’t hold their U shape. Somewhere in the middle is just right.

Next up: baby clothes!

The Great, Long-Awaited NICU Drive!

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My cousin Karen took this photo for me and I just couldn’t be more crazy about it.

Like all things in my life, I start out with the very best of intentions and get completely sidetracked by reality. A month and a half ago I found out that my NICU had a need and I knew I could count on the mighty forces of the internet to save the day. And then my life crashed down around me and I went into my cozy little cave and ignored all the rest of the world. I’m starting to get back on my feet now, so I have to follow through on this.

Babies in the NICU (or Special Care Nursery as they call it in my hospital – probably because it sounds nicer. They’re not in need of “intensive” care….oh no, just special care. That’s much less scary.) have a lot of special needs. And because most babies are born when they’re supposed to be, there isn’t a huge marketplace out there providing all the special things these tiny babies need. Preemie clothes are rare out there, and they don’t take into account the fact that a lot of these babies have tubes and wires and have to be incredibly easy to remove should an emergency arise. The environment of the NICU is harsh and loud and the polar opposite of the nice dark cozy womb the babies are still supposed to be in, so the babies need things to try to recreate that environment as closely as possible.

Almost all NICU’s rely on donations for these items. Medical costs are high enough, particularly on top of the high costs of everything else a baby needs, so if donations aren’t forthcoming, the babies have to do without. The hospital won’t buy these things, even if they’re available. They just make do. At my hospital this means that the angel nurses, who all have their own families they’re caring for on top of my boy, go home and with their own money and time, make all the items the babies need.

Meanwhile, us poor moms are frantic nervous wrecks feeling frustrated and impotent and completely alone in the world. Suddenly there are healthy, happy babies everywhere you look and all you can focus on are how empty your arms feel. Any support you receive is so treasured you just want to kiss everyone who so much as pats you on the shoulder. When you see a little tag on a blanket that reads, “Donated with love from the sisters at the Church of the Living Christ” you feel buoyed up by the loving hands that made the blanket that cradles your baby, especially when you can’t.

Over the next little while I’ll be sharing items that the NICU needs. It may take me a while before I get all the items up because I have to draft a few patterns, and while it couldn’t be simpler in the flesh, turning them into a digital format is a little complicated for my weak photoshop skills.

The first item is what the NICU needs the absolute most. Miniature quilts.
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These little quilts are good for everything in the NICU. They serve first and foremost as isolette covers. As I mentioned, the NICU is a very hard environment. There are bright florescent lights on all day and all night, so not only is there no regular day/night cycle, but these poor babies go from a place of total darkness where they are safe and protected, to a lifesaving but still harsh plastic box that – by necessity – leaves them vulnerable to all the stimulus in the chaotic room.

The blankets are also used to keep the babies warm in the moments when they are allowed to be held, a cozy cover when the mothers get to work on breastfeeding, and they go home with the baby as a memento of what they accomplished there.

Studies have shown that preemies are at much higher risk for learning disabilities, ADD and ADHD, and the commonly accepted reason for this is due to all the stimulation they can receive in the NICU. A baby who spends a great deal of time there experiences so much more stimulation through all the lights and sounds and interaction with the nurses, that many doctors feel their brains retain more pathways for communication, which can lead to trouble processing information later on. These simple little blankets help to shield the babies from all the activity around them, keeping their little isolette as dark and quiet as possible while still allowing the nurses to keep a watchful eye on them.

These blankets can be any style you dream up. They should be thick enough to dim the light, so handknits are not a great option here. It is helpful to have one side that is a solid color because some babies – such as babies born addicted to drugs – are extremely sensitive even to the visual stimulation in a bright bold pattern. They should measure roughly two feet by three feet, but that is not an exact measurement by any means. They can easily be bigger since blankets do fold easily, but they shouldn’t be very much smaller. Since they will be going home with the babies, snuggly fabrics are a plus, but not a necessity. They can be an elaborate hand pieced quilt, or a simple little blanket. The blanket Atti received was a snuggly microfiber on one side, a bright Care Bear themed cotton on the other, sewn together like a pillow with a simple topstitching around the outside. No batting, no further quilting. And it works great.

If you are interested in donating to our cause, you can mail any completed blankets to:

Removed until I get a new P.O. Box.
Email me for info! tresa at reesedixon dot com

(this address may be subject to change, but I’ll be sure and warn you)

If you don’t have time to make a blanket but still want to contribute, I’ll happily take any stash you have off your hands and put my teenage girls from church to work. Fabric, batting, thread, anything you want to get rid of that could work for baby blankets.

Oh, and if anyone can come up with a clever name for this, I’d love to hear it. Right now my brain can’t come up with much more than, “Is my baby coming home? When is my baby coming home? Can my baby come home today? How about tomorrow?” And that isn’t very good at describing what we’re trying to do here.

Here’s me when I got my first good snuggle while they changed out his tubes. Apparently, pure unabashed joy makes me turn into an anime character.
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