Why he’s not intellectually disabled

Pride

If there was any doubt left in me that those early tests were right and Atti is mentally disabled, here’s the proof I need that they were wrong.

Atti’s a really picky eater. Despite all those years of beautifully homemade baby food, he has gone full on carb-aholic on me, and if I let him he wouldn’t eat anything but crackers and juice all day long.

He’s so underweight that we are constantly debating if it’s worth letting him go hungry, or just stuffing calories in his face however we can. I am not a mom that shies away from discipline or time outs, but I also don’t want to turn eating into a big negative experience, so we end up doing lengthy negotiations where we beg him to eat three bites of his hot dog or he won’t get any more cheerios. There is frequently a whole lot of fanfare around The Last Bite.

The other day Bear was feeding him pasta with the promise that if he finished the bowl, he could have crackers. Atti was eating really well so Bear didn’t mention that Atti was closing in on his last bite, he just tried to keep pushing food. Finally Atti took the last spoonful of pasta so Bear set the bowl down on the high chair and got up to get the crackers. Atti looked down into the now empty bowl, realized he had *technically* earned his reward, spit his partially chewed pasta back into the bowl it came from and asked, “Crackers?”

Yeah, this kid knows what’s up.

Atti’s First Day of School

First Day of School

After our crazy jam packed weekend, following two crazy jam packed weeks of appointments, we finally reached what we had been working so hard for and Atti had his first day of school on Monday.

In many ways it was a little anti-climactic. Since Atti’s going in as a Special Ed student, there’s a whole different procedure than a typical student. No lists of school supplies to bring, no instructions of school policy, no orientation. Since Atti’s not starting at the beginning of the school year, we’ve just kind of ended up figuring out what we need to know as we need to know it. Including not having the right start time for the first two days.

Bear and I came together his first day to see how things were going to work, and it’s a good thing we did since there was a lot of figuring out we all had to do together. Atti doesn’t have a wheelchair or anything yet, so we had to bring his stroller in from the car so he has a way he can sit up and be transported around. We knew that the class started with breakfast in the morning, but we didn’t think through that we would need to start a tab for him in the cafeteria. There are so many little details that you take for granted when your kid does things the same way as all the others, but when he doesn’t, then every little detail becomes custom. And that’s a lot of planning and negotiations.

After we left breakfast and got back to the classroom, Bear and I didn’t stick around for long. It became obvious that Atti was distracted by having us there so we said goodbye and went home with tears in our eyes.

Atti and Teacher Larry
Atti’s only had two days of school so far. I got a call on Wednesday morning that he had a fever so I raced down to snap him up and he and I have spent the rest of this week drinking gatorade and wiping our noses. But already he’s telling me about the stuff he’s learned. He’ll show you how he washes his hands by rubbing them together, he’s already answering questions easier, and yesterday he named his colors for me.

It’s bittersweet that he’s already saying words I can’t understand because I have no context for them. It won’t be long before I won’t be his best translator anymore. I have so much faith in his teachers and I’m so excited that he’ll open up to more of the world, but it is sad that that means he won’t be exclusively mine anymore.

Happy Birthday to Atti

Mickey kiss
Our whole family is currently fighting off what feels like the plague, and I think this might be the moment of contamination. But it was too cute to resist.

Atti turned three on Saturday, so amid the rush to start school and another conference for me, we went down to visit the grandparents and have a day at Disneyland and party with the cousins before settling in to the school routine. It was madcap, to say the least.

Teacups
Atti’s a little daredevil and didn’t have much interest in most of the little kid rides, but he loved going high in the Dumbo and he loved the twisting teacups. Bear and grandma couldn’t keep up with him.

We ended up leaving by noon, since I was feeling pretty sick and Atti was worn out. It’s hard work for him to sit up so much, but he loved every second of it.

Saturday I went to another one of my conferences and avoided touching any of the munchable babies around. By then I was on day 4 of feeling sick so I thought I was recovering until I came home and could barely get into the bed with the coughing and shivering I was doing. I apologize profusely if I spread this to people. I thought I was on the mend, but apparently it was the calm before the storm and I’ve gotten absolutely walloped.

Elmo birthday cake
While I spent the weekend in bed and on every kind of drug available over the counter, Bear and his mom went into party planning super mode.

Bear bought toys for goodie bags and made this cake from scratch, and Sal took care of the lunch and all the fixings. The only thing I did was wrap a few presents because I felt guilty I wasn’t doing anything. And then I took back to my bed.

Birthday presents

Atti got some really great stuff. New school clothes, tons of learning toys, and lots of attention from his cousins.

And from his mom? He got this horrible mutant flu/cold/plague. Fortunately he seems to have an easier time of it. My immune system can always be counted on to fail me, so hopefully he won’t be incapacitated for a solid week like I have been. *whine*

Now I’m in trouble

Atti goes down the stairs!

School hasn’t even started yet and Atti’s already making leaps in progress. Look at that little diaper booty going down the stairs by his own steam!

He’s fallen down those stairs just once, and since then he’s kept his distance. He was actually way more interested in playing with the baby gate than the stairs, so we finally took it down and just let him police himself.

Then the other day I saw him crawl over and put his hands down on the second step. I was so surprised I asked him, “Atti, do you want to go down the stairs?” and he responded with his typical, “Oh, OK.” That’s how he answers everything he means to say yes to, which is especially funny when it’s something he asks for. “Oos?” “Juice? Are you asking for juice?” “Oh, OK.” As if I’m really twisting his arm and he finally caves in to my juice pushing.

Anyway, I showed him how to back into the stair, how to move one leg at a time, how to shift his weight from one side of his body to the other, and before long we were both chanting, “One leg, two leg, back up, one leg, two leg, back up” all the way down the staircase before climbing back up and starting again.

Sometimes Atti would cheat and stick his legs out straight behind him to slide down the stairs on his belly like a seal, but by the time we finally wore him out he was doing most of the work all by himself. And shouting “BY MYSELF!” to make sure I knew it.

Oh I know it, buddy. And I’m thrilled and nervous at the same time.

A brighter day

Love

I have to thank you all again for your support and patience as we’ve dealt with this new phase of Atti’s life. My blogging has seriously suffered on those days when I just couldn’t bring myself to face the internet but I have felt your endless support to get through it.

It’s all done now. Last Thursday we had the big meeting with every specialist ever to get Atti all set up for services through the school district. It was incredibly strict and by the book because the legal requirements in these situations are stunning. Every time the coordinator stopped the discussion to insist that no decisions had been made and that they were all pending my approval I thought of all the parents who had fought those battles for me. At one point in the meeting I actually found myself getting a little emotional as I thought about the mom who must have fought to make sure that her child had a specific number of minutes the school was required to allow them to be with the typically developing kids. I thought of those Special Ed’s of my youth, the ones that haunted me when I thought of Atti attending them, and I wanted to meet that mother so I could kiss her feet.

I’ve also made peace with the school psychologist. After crying things out with one of Atti’s therapists, she helped me understand that his role is strictly to decide which class he should attend today. That means two things – 1) these tests are not diagnostic which means they don’t predict his future and 2) the psychologist has to make the assumption that any delays Atti has are based on cognition. While I and a few of his other specialists who know him better are sure that cognition is the last thing on the list, the psychologist has to assume it’s a mental delay so that they put him in the appropriate classroom. During our last meeting the psychologist explained that he’s just too little to test for all the different variables, so they have to wait until he’s older to get more specific.

Meanwhile, I’m even more convinced that Atti’s not intellectually disabled, he’s just a bit of a butthead. After failing to answer any question put to him on the tests and completely freaking me out, the other night Bear pointed to one of his letter blocks and asked, “What’s that?” Atti didn’t even hesitate. He said, “It’s a J!” He wouldn’t do it for the psychologist, but when he feels like it, he shouts the answer out with conviction.

Atti starts school on Monday and he’s going to love it. I need to spend this week getting him ready. I have to buy him a coat, and he needs a little backpack that will probably be as big as he is. I think he’s just going to zoom and before I know it I’ll have this little kid with all these new skills.

Watch out, here comes the mama bear

Atti

This week has been packed full with appointments. Atti turns three in a couple of weeks, and once he’s three he’ll start school. Before that happens, though, we have to meet with an army of experts who put him through a barrage of tests to determine where the best place for him will be.

Today we met with a school psychologist. He has the job of determining Atti’s intellectual ability and using that to recommend which classroom he goes into. It did not go so well.

Atti performed about the same way he always does on these tests, which is not great, but the tests are really not geared towards a child who has motor delays. Because there really isn’t a great way to test a child with motor delays. At least until they can speak fluently, which Atti can’t. We’re going back on Friday for another try, but I’m not hopeful. There wasn’t anything Atti can do that he wouldn’t do.

At the end of the meeting the psychologist said that he guessed Atti had an IQ of about 70. Which is considered intellectually impaired.

And I’ve been crying ever since.

I know he’s not right. I know that Atti is as sharp as a tack. I showed the psychologist how Atti can count to 20, knows the whole alphabet by sight forwards and backwards, can sing every song ever sung to him, but because he won’t express himself in the manner dictated by the test, it must be indicative of a mental retardation.

But what the test wants to see are things that all revolve around motor skills. He won’t stack blocks, he won’t push a toy car, he won’t do a puzzle, because all of those things are hard to do laying on your stomach and with limited fine motor skills. And all of the higher level stuff he can do doesn’t seem to matter. Those are “splinter skills.”

I’m just so angry right now. How in the world would you be able to determine how well my child will be able to learn based on whether or not he can stack blocks? My little guy has a bright mind, and it’s trapped inside an often uncompliant body. He has work enough to do, I’m not going to let anyone else make his road harder. I will not accept this.

Making his needs known.

Last night Atti and I were home alone together while Bear was off with the teenage boys at youth group. He’s started doing the most WONDERFUL thing where he’ll get tired of playing with his toys, crawl his way over to the couch, scratch at our legs and ask, “snuggle?”

Sometimes this is really code for wanting to be tickled until he hiccups, but last night when he asked for a snuggle, he meant a snuggle. We spent two delicious hours on the couch watching sappy old movies while we laid down together and I played with his hair. Heaven.

He popped his head up and looked me in the eye, pressed his sweet chubby hand to my cheek and gave me a kiss. Then he took both hands and mussed my hair up like I always do to him, in the process jabbing me right in the eye with one of those sharp baby fingernails.

He managed to scratch my sclera, so now I’m typing this one-eyed and wearing a patch to allow the eye to heal while tears are streaming down my face. After I hit submit I am officially banned from the computer until Monday to allow my eye to heal.

Which means a whole lot more Atti snuggle time. I think he might have planned it this way.

Atti’s First Heartbreak

True Love

This is Atti and his little girlfriend Laney at a going away party. All the pictures came out blurry because I was racing to keep up with the cute in poor lighting conditions, but I couldn’t miss my opportunity. Laney and her family, including my friend Natalie, moved to Reno and left us behind.

Atti still has other sweet friends, including another little girlfriend Sarah, but it’s really hard to let go of Laney. She was always the first to rush over to him with a smile and a wave of her cute chubby hand, the one to fight to be next to his stroller when the class went on a walk, the first one to include him. And Atti adored her. He’d pet her pretty little cheek and say, “Awwwww….” and smother her with slobbery kisses and hugs.

Maybe it’s better if these two take a break from each other. I don’t know if I’d want to be dealing with a love this pure when they’re both teenagers.

Facing down a new year

Christmas Morning
Atti squealing with delight when he unwraps his new little piano toy

As I was compiling my list of crafty goals and plans for the year, I was tempted to erase them all and just write down, “Have one year go the way I think it will.” Three days in and I’m already being faced with some things headed my way that could change the whole direction of things for the foreseeable future. (No, I’m not pregnant.)

My crafty goal list is largely untouched other than taking off the few things I did manage to accomplish, mainly because there is still so much good stuff on there I want to get to if things like a move and two new careers would stop getting in my way. But, I don’t want them to stop getting in my way.

I’ve been thinking about what my Word of the Year will be this time around, and I’m thinking: Dedication. I’ve signed myself up for a whole lot of work, with my fingers all in a whole lot of pies, but I can’t help it. There’s a lot that’s important to me and a lot I want to do. Now is the time to rise up and meet the opportunities that have come my way.

I never in a million years would have predicted how 2010 shaped up. We faced another big move that sucked up most of my creative time this year, but what really changed things was getting the opportunity to write for the Guardian. 2010 is the year I can say I’m a writer.

It’s also the year I became an honest to goodness activist. For women, for gays, and now for war effected people of Africa.

My word for 2010 was, “Begin.” I think I did.

Merry Christmas and Happy Vacation

closeup

My little family have been such a couple of troopers as I’ve spun off in my Christmas frenzy. Atti has gotten used to too much Sesame Street, Bear has gotten used to handling most of the cooking and cleaning, and both of them would like me to take my head out of the projects long enough to actually spend some family time together.

After years of going along with extended family traditions, I’ve put my foot down since Atti was born. Now I want to establish our own traditions, which include Santa coming to our house and Atti waking up in his own bed Christmas morning. So we’ll have a big dinner tonight, wake up and open presents, have a nice breakfast, and then hit the road to drive down to Grandma’s house. We’ll be staying with them for nearly a week, and I’ve promised that there will be no working while on vacation.

So I’ll be taking some time away from these pages until I get back to town at the end of next week, and I hope to have nothing to show from my time away besides lots of games and snuggles and quality time.

I hope all of you have a joyous Christmas surrounded by the people you love. Thanks for spending this time with me.